Parenting a special needs child

Flippin’ Insurance September 17, 2009

The root of all evil insurance. If it wasn’t enough that I have a child that needs fancy doctors and therapies up the whazoo I get a bill for all these because insurance won’t cover it. Don’t get me started on the co-pays as well. I am getting a migraine thinking about it. I am so close to paying off the neurologist bill from seven months ago. Ha ha but our coverage for OT therapy is about to run out. And the lovely people at OT say the insurance will most definitely deny the claim. They haven’t sent in the paperwork to the insurance company when our coverage runs out in one week. Huh? The insurance takes seven to ten days to probably deny and then we have to appeal. And this is just today.

The medical issues alone before my son’s diagnosis put us in a hole. We had some coverage for the ENT but we still were getting hit with a significant fee every three months and then we had to cough up the dough for the portion of his surgery that wasn’t covered. But now its two years later and we are still doing the follow ups with the ENT and pay the hefty office visit fee. Then came the neurologist and I suppose I should be thankful his office visit was minimal compared to the DNA testing. Why didn’t anyone tell me it costs and arm and a leg to get these blood tests run? We lost our insurance when my husband lost his job and were hit huge monthly fee for the other insurance and still were paying all the doctor bills. Thankfully it only lasted six months because we couldn’t have made it one more month. We had already had to drop ST because it was only partially covered by insurance and it took six months, a thousand phone calls and resubmitted claims to get reimbursed for the partial coverage.

On the horizon there’s so much more and I frightened to think of what I might post in a few months when the therapies are no longer covered, more follow ups, the DAN doctor protocol, and just yesterday in the news it looks like our state will be raising insurance premiums 7%-12% (and we will be absorbing this hike in higher copays), and ABA still isn’t covered in our state. I have no doubt in my mind I will recover my son but will I be able to send him to college?

 

 
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