Parenting a special needs child

Mr. DAN Dr. visit #3 January 29, 2010

Phew finally.  After a cancelled appointment due to traffic, a rescheduled appointment, another reschedule appointment because I was smart enough to get on the cancellation list and finally a drive through white out snow conditions, I made it to our 3rd DAN Dr. appointment.  So this visit I got to review with Mr. DAN three more test results.   While I already had copies of two of them I had gotten them after my last visit so I didn’t get to talk with Mr. DAN about them.

Urine Toxic Metals – yes and thank you, thank you, thank you.  A test result that did not come back awful.  All metals were in the green ok zone except for Lead which was only minimally elevated.  So we may not have to chelate or just do a topical lotion for chelation down the road.  But Mr. DAN told me this was something we didn’t have to worry about for a while because the results weren’t bad at all.

IgE immediate and IgG delayed food allergy tests – So I have already discussed our results on this one but I ask Mr. DAN what this meant in the long run.  He would not be specific but said that we may be able to add back in eggs at the end of April.  That would be awesome because so far this is the hardest.  For eggs he tested 1 & 2′s but the 2 was borderline 1.  Again some good news.  Gluten and Casein unfortunately are gone for awhile and especially Casein because he tested very high for Casein sensitivity.  But I am ok with that. I don’t think that the Gluten and Casein removal is that hard as long as I can add back in the eggs.

Metabolic Analysis Profile – So I am fuzzy on the details here and feel a little bit like a mad scientist trying to decifer it all.  But from my general understanding my son has these imbalances and deficiencies due to his inability to process (metabolize) his foods.   The results point us in the direction for what vitamin supplementation he needs and how to treat his hyperactivity.  So two key results that show his need for B12 and other B vitamins are Methylmalonic Acid and Formiminoglutamic Acid.  My son was way way in the red for both of these and this would be one of the reasons he has responded so well to the B12.  We believe the reasons for his hyperactivity has to do with his Catecholamine Metabolism.  Ok big words again really simply he was in the red for this.    And there are some things we can add that may be able to tell us if this will regulate him so that he is always not so go go go.

And the new supplements -  5 HTP (5 Hydroxytryptophan), B6, Folinic Acid and Fluconazole.  5 HTP, B6 and the Folinic Acid are for calming, attentiveness, awareness and supplementing for deficiencies.  Fluconazole is for yeast which we my son is still battling.  The Fluconazole is only for 2 months.  The rest are for the long run but by adding 5 HTP we may be able to get rid of the melatonin.

I also had a  little side chat with Mr. DAN.  I love that he will take the time to talk with you.  We talked about the fact that this is not the standard of care for Autism and that we are kinda sorta seeing what works.  unfortunately and fortunately my son is a guinea pig.  So far nothing we are doing is scary to me.  I know I lost 98% of you awhile back.  And I am still not foolish enough to think that this would work for all children on the spectrum.  But again yet another one of my real proofs was when we had to take away the Zinc because we ran out.  Immediately my son went back to biting, chewing and mouthing anything he could get his hands on.  We put it back in and they all went right away.  That’s all I need for proof.  The goal here is that eventually he won’t need any of this but for now he does.  Because not only is he deficient he is not absorbing the nutrients and the vitamins from the food he is eating.  Once his gut (stomach) is healed we will be able to take away the supplements because he will be able to properly digest and process his foods. 

The visit ended with Mr. DAN asking me “so you are finally getting to meet your son?”.

 

 
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