It’s been a long while and I am sure everyone was eagerly awaiting my next post. A lot of stuff has been going on and I don’t know where to begin. Let’s see…. So I went and took the 4 hour round trip drive to the DAN Dr. He say’s we are still in the adding phase so we are adding in 2 more supplements to help with calming and work with the B12 shots to aid in more language development. We are up to 12 supplements a day and some taken 2 or 3 times a day. We have had to start getting more creative in getting them in P. With the P’s language he now likes to sit and watch us get all the supplements ready. We tell him it makes him better and he is much more willing to take them now and repeats “makes me better”.
Only 2 more days of summer school and I can’t wait to get him out of school. All the teachers and aides are sweet and friendly but they don’t seem to care like the regular school year teachers do. The incident where they sent home popcorn with butter that they had given P without my permission was enough. Not only are his diet restrictions on his IEP but I took the time and wrote the summer program a separate note about his diet restrictions. It is a very serious error in judgement, lack of concern and a safety risk what they did. I and they were lucky that P has no allergic reactions where it would land him in the ER. If it was it would have been all over the news. The foods I don’t give him make he sick to his stomach for a few days if not weeks and affect his behavior. I now have to contact the district SPED director and report the school. I also will be contacting our state SPED watch agency and reporting the school. It may not do much but it will make local parents more aware of how vigilant they have to be in monitoring their children’s care. P does not have a true allergy to any foods but it doesn’t dismiss the severity of what they did. On a side not P’s DAN Dr. thinks we may never be able to add gluten back in his diet.
What else? Oh, P has been chatting up a storm. He now tells me “no nap” if I tell him nap time, and he really means it. He now points and tell me “look” wait for mom’s response “look, clouds”. “No please” because he doesn’t want to go home. “I saw a penguin” to the eagle statue in front of the library. “Auntie” once we pass auntie’s exit on the highway, “Go see Auntie”, “I want go see Auntie” because we were not turning around to go to her house. And so much more.
The big news for this week is we finally got an appointment with one of the top Gastrointestinal Dr’s in the country, after 1 year on the waiting list. He is 1 of 2 Dr’s in the country that are familiar with children on the spectrum and the GI issues they face. He has published studies on his findings and we are so lucky to be able to go see him. I can’t wait to go see him in November.
Next week P’s 4 yr physical and I am hoping that all goes well when I tell the pediatrician our plans for immunizing this time around. I think it should, that’s why we chose her.
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